Help us raise ₹7.5 Crore to bring the First-in-Human Gene Replacement Therapy clinical trial for CDKL5 Deficiency Disorder to India. Every contribution brings us closer to life-changing treatment.
Our Goal
₹7.5 Cr
Progress towards goal
We’ve just begun this journey. Your support can make a life-changing difference.
Donate Now“Together, we are the cure.”
Newly diagnosed with CDKL5?
You are not alone Get Support →Gene therapy clinical trial for CDKL5 Deficiency Disorder is advancing globally. Register your interest to receive clinical trial information, and opportunities to participate.
Register →Registration expresses your interest only and does not guarantee participation in any clinical trial or gene therapy programme.
Your donation directly supports the development of AAV9 gene therapy for CDKL5 Deficiency Disorder, bringing us closer to the first human clinical trial.
Supporting clinical trial readiness, and collaboration with global gene therapy experts.
Building awareness, policy engagement, and support networks for families across India and South Asia.
Helping families navigate diagnosis, care options, and access to emerging therapies.
Every step forward brings hope to families affected by CDKL5 Deficiency Disorder across South Asia.
Families Connected & Supported
Awareness, Advocacy & Community Building
Supporting Gene Therapy & First-in-Human Gene Replacement Therapy clinical trial for CDKL5 Deficiency Disorder to India.